The FPIES Food Survey
I was just so frustrated when we first realized Matthew had FPIES. There's very little research out there on kids with solid food FPIES. He was nursing around the clock - he had just started army crawling, was into everything, and needed more calories. We had to find something to feed him, but there was so little guidance. I refused to accept that - if I couldn't find the information I needed to feed my son, then I would gather it myself. I created a survey using a list of foods compiled on a BabyCenter post from a year before and the Google Docs survey form. My motives were selfish, but I shared the results and other FPIES parents have found it helpful too!
The Food Survey
Survey Response Graphs
Raw Survey Data
I sort the raw data by Matthew's triggers, comparing the other kids' trigger foods to choose our next trial.
Pass/Fail Pie Charts
The choices "tried and unsure" and "never tried" are removed, so you get to see the chart of
pass/fail rates for the kids that actually tried the food. Two warnings, though...
1. The charts are accurate, but the percentage calculation is all messed up (I've tried a million
ways, it's a bug in Google). So this is great for a visual representation, but the percentages
won't match up with the charts.
2. Though this does give a great representation of the pass/fail rate for each food, it is flawed.
Take Matthew for example. He reacted to peas, so his data will show up in the peas chart.
But b/c of his pea reaction we are avoiding all legumes...so the pass/fail rates are a little
flawed b/c the kids trying each food are the ones who probably haven't had a reaction to
that food group yet.
pass/fail rates for the kids that actually tried the food. Two warnings, though...
1. The charts are accurate, but the percentage calculation is all messed up (I've tried a million
ways, it's a bug in Google). So this is great for a visual representation, but the percentages
won't match up with the charts.
2. Though this does give a great representation of the pass/fail rate for each food, it is flawed.
Take Matthew for example. He reacted to peas, so his data will show up in the peas chart.
But b/c of his pea reaction we are avoiding all legumes...so the pass/fail rates are a little
flawed b/c the kids trying each food are the ones who probably haven't had a reaction to
that food group yet.
Food Trials Listed By Success Rate
A fellow FPIES mom, Joy V., came up with the great idea of analyzing the raw survey data
to rank which foods have the greatest success rate when trialed. She removed the choices
"tried and unsure" and "never tried," then calculated the success rate of each food. Then Joy
created a chart ranking the foods from the highest success rate to the lowest.
to rank which foods have the greatest success rate when trialed. She removed the choices
"tried and unsure" and "never tried," then calculated the success rate of each food. Then Joy
created a chart ranking the foods from the highest success rate to the lowest.
