Let's Help Each Other Find FPIES Doctors!
I've been wanting to do this pretty much since I became a "FPIES parent." Well, here it is, and I hope you find helpful!
Initially, the most frustrating part of the FPIES journey is trying to find a physician you can trust to correctly diagnose your child with FPIES. We've all been there and (hopefully) found physicians we trust who are knowledgeable about what FPIES is and how to manage it. By sharing our knowledge we can make the FPIES journey less frustrating for all of the parents who come after us.
Please take a moment to fill out this quick questionnaire with your FPIES doctor's information:
And if you're new to FPIES and trying to locate an FPIES doctor in your area, check out this spreadsheet.
Remember, each one of us makes a difference in each other's lives EVERY day :)